The Congenital Cardiac Research Collaborative focuses on research and quality improvement in children and adults with congenital heart disease.
Overview of CCRC
Founded in 2015, the Congenital Cardiac Research Collaborative (CCRC) is a multi-center research and quality improvement consortium comprised of invasive and non-invasive congenital cardiologists and cardiac surgeons with a common goal to advance pediatric and adult congenital cardiac research and improve outcomes for children and adults with congenital heart disease.
Recent Impact
Organ-level radiation dose estimations from cardiac catheterizations in neonates with tetralogy of Fallot
Clinical Status and Reintervention in Neonates With Symptomatic Tetralogy of Fallot: A Landmark Analysis
Stenting the Ductus Arteriosus in Neonates with Ductal-Dependent Pulmonary Blood Flow: Technical and Anatomic Considerations
Participating Medical Centers
Improving outcomes for children
The CCRC has a number of ongoing and recently completed multi-center research studies and ancillary projects dedicated to the invasive investigation and treatment of congenital heart disease.
News & Updates
CCRC Fall 2026 Meeting: Advancing Research, Strengthening Collaboration, and Looking Ahead
Seattle, Washington | October 8–9, 2026 The Congenital Cardiac Research Collaborative (CCRC) gathered in Seattle for its Fall 2026 Conference, hosted by Seattle Children's Hospital. Over two days, investigators, clinicians, researchers, study coordinators, and data...
CCRC 2026 Research Review: Forward with Science
The Congenital Cardiac Research Collaborative is entering an exciting new phase. After years of building the infrastructure for a prospective, longitudinal congenital heart disease (CHD) registry, CCRC is seeing that investment translate into new research, expanded...
Join Us for the CCRC’s Cardiac Cycle Spin-a-Thon and Help Us Fund Pediatric Heart Research
About 1 in 100 babies are born with a form of congenital heart disease. That's roughly 40,000 children each year in the United States alone. Many of these children face surgery, ongoing medical care, and lifelong health challenges. But research is changing that....